My name is Noah and I’m 11 years old. I had my first seizure out of the blue this past Christmas morning. After that, I had an EEG which was abnormal and was started on medication. After another ER visit, an MRI, and some time to adjust to the Keppra, I’m doing well and have been seizure-free! I also stopped having what were possibly absence seizures since I started taking Keppra.
Being diagnosed with epilepsy changed my life. I had a hard time understanding the seizure and my epilepsy, but I have learned I am not alone, and one in 26 people have epilepsy. It’s important for people to learn about epilepsy, and what to do if someone is having a seizure.
At first, I didn’t want a lot of people to know I had epilepsy, but then I realized epilepsy is not a bad thing or something to be ashamed of. Our brains just sometimes work differently. Having epilepsy doesn’t change who I am.
I decided to run with Athletes Vs. Epilepsy because epilepsy has become a big part of my life.
The rules of the race are that you have to be 12 years old, but they are letting me run the race because my parents and doctor have said I’m healthy and can run the distance. My goal is to raise awareness so more people can learn about epilepsy, and also raise money for research about epilepsy. I have been blessed that my epilepsy has responded so well to Keppra, but other people are not as lucky and there needs to be more research about medications and treatment.
If you are interested in running in the 8k, Half Marathon or Marathon in Philadelphia on November 18th, 2018, please check out 2018 Philadelphia Marathon, Half & 8K